Infants' tongue-tie may be overdiagnosed and needlessly treated, pediatrics group says (2024)

NEW YORK — Tongue-tie, a condition in infants that can affect breastfeeding, may be overdiagnosed in the U.S. and too often treated with unnecessary surgery, a prominent doctors’ group said.

Infants' tongue-tie may be overdiagnosed and needlessly treated, pediatrics group says (1)

The American Academy of Pediatrics is the latest, and largest, medical society to sound an alarm about the increasing use of scissors or lasers to cut away some infants’ tongue tissue when breastfeeding is difficult.

“It’s almost an epidemic,” said Dr. Maya Bunik, a Colorado-based co-author of the report.

Experts say there isn’t a good count of how many infants each year are being treated for tongue-tie with surgery, though Bunik believes the annual tally may exceed 100,000. Research suggests many of those treatments are not necessary, she added.

The academy’s new report encourages pediatricians and other medical professionals to consider nonsurgical options to address breastfeeding problems. The report cites a study that suggests less than half of the kids with the characteristics of tongue-tie actually have difficulty breastfeeding.

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Ankyloglossia, or “tongue-tie,” occurs when an infant is born with a tight or short band of tissue that tethers the bottom of the tongue’s tip to the floor of the mouth. The condition can make it hard for the infant to extend and lift their tongue to grasp a nipple and draw milk — which in turn can be painful for the mother.

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Doctors say it’s critical to get breastfeeding on track in the first three to four weeks, and surveys indicate most parents want to breastfeed, so it’s natural that they want a quick solution to a problem, Bunik said.

Ankyloglossia diagnoses have been increasing worldwide, though there is no uniform diagnostic criteria for this condition and no consensus on how to treat it. One common approach is to cut the tissue with scissors, but dentists increasingly are using lasers to vaporize the tissue — some charging $800 or more.

But the procedures can cause pain and sore mouths, potentially deterring babies from trying to breastfeed, Bunik said.

“The practice (of treating tongue-tie) got to be very common without a lot of good data,” said Wisconsin pediatrician Dr. Jennifer Thomas, who also co-authored the report.

The report also recommends lactation experts, pediatricians and surgeons and other medical professionals work with parents to evaluate possible reasons for breastfeeding challenges and make the best treatment decision.

The American Academy of Pediatrics, which has 67,000 members who specialize in treating children, started working on the report in 2015 after some pediatricians began to notice that an increasing number of patients were going to dentists to get treatment for tongue-tie, Thomas said. Pediatricians were finding out after the surgeries.

At least two other medical groups have issued statements about tongue-tie. In 2020, the American Academy of Otolaryngology-Head and Neck Surgery issued a consensus statement in which member physicians said they believe tongue-tie is being overdiagnosed in some places and that there isn’t sufficient evidence to support claims that using lasers is superior to other techniques.

A year later, the Academy of Breastfeeding Medicine, an international group, issued a position calling for more research into tongue-tie treatment and stressed that decisions “require a high level of clinical skill, judgment and discernment.”

The American Dental Association didn’t directly respond to The Associated Press’ questions about the new report. It sent a statement saying the organization agrees with a 2022 policy statement by the American Academy of Pediatric Dentistry, which noted not all children with ankyloglossia need surgical intervention and that a team-based approach with other specialists can aid in treatment planning.

Haley Brown saw a lactation consultant two years ago after her son Shiloh, who was born prematurely, had trouble nursing. But as months passed and the situation didn’t improve, Brown turned to a Denver dentist she heard about on social media The dentist diagnosed Shiloh with tongue-tie and also lip-tie, in which the tissue inside the upper lip is too tight. Shiloh underwent a short laser procedure that cost $750.

Breastfeeding improved immediately. “Things just seemed a little easier for him,” said Brown, 33, of Englewood, Colorado.

Brown later had another baby, and another lactation consultant told her that a scissors snip could have been less involved and just as effective. Brown said the laser treatment worked for Shiloh, but added: “I probably should have consulted with my pediatrician before I went straight to the dentist.”

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Infants' tongue-tie may be overdiagnosed and needlessly treated, pediatrics group says (3)

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Infants' tongue-tie may be overdiagnosed and needlessly treated, pediatrics group says (5)

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Infants' tongue-tie may be overdiagnosed and needlessly treated, pediatrics group says (2024)

FAQs

Is a tongue-tie overdiagnosed? ›

In 2020, the American Academy of Otolaryngology-Head and Neck Surgery issued a consensus statement in which member physicians said they believe tongue-tie is being overdiagnosed in some places and that there isn't sufficient evidence to support claims that using lasers is superior to other techniques.

Why are so many babies getting tongue-tie surgery? ›

It's no surprise that tongue-tie surgery has become a sought-out trend across social media. Breastfeeding can be complicated, and mothers want their babies to be as happy and healthy as possible. "We believe that social media has aided in the increase of these procedures," Cusimano-Imhof said.

What is wrong in tongue-tied children and how can it be fixed? ›

Tongue-tie (ankyloglossia) is a condition in which an unusually short, thick or tight band of tissue (lingual frenulum) tethers the bottom of the tongue's tip to the floor of the mouth. If necessary, tongue-tie can be treated with a surgical cut to release the frenulum (frenotomy).

What are the diagnostic criteria for tongue-tie? ›

Tongue-Tie Diagnosis

Tongue-tie may be suspected in infants or children who have difficulty with the following: Breastfeeding. Lifting their tongue. Sticking the tongue out (the tongue may appear notched or heart-shaped when the child attempts to do so)

Should I fix my baby's tongue-tie? ›

Treatment for tongue-tie is controversial. Some doctors and lactation consultants recommend correcting it right away — even before a newborn is discharged from the hospital. Others prefer to take a wait-and-see approach.

Is tongue-tie an abnormality? ›

Ankyloglossia, commonly known as 'tongue-tie,' is a congenital anomaly that occurs predominantly in males and is characterized by an abnormally short lingual frenulum.

Why are they cutting babies' tongues? ›

In infants, tongue tie is treated by making a small cut to the tissue connecting the tongue to the floor of the mouth (lingual frenulum). The procedure, called a frenotomy, allows the tongue to move more freely. This can be done in a healthcare provider's office without anesthesia.

Is tongue-tie surgery recommended? ›

While a frenotomy is a relatively minor procedure, complications such as bleeding, infection, or feeding difficulty sometimes occur. So it's never a good idea to do it just to prevent problems in the future. The procedure should only be considered if the tongue-tie is clearly causing trouble.

Is a tongue-tied baby genetic? ›

Causes. Tongue tie occurs when the frenulum (the band of tissue under the tongue) fails to separate from the tongue before birth. This may be caused by genetics. The band stays connected as the child grows because it's unusually short or thick, creating a tightness to the tongue that limits its mobility.

Is there a natural way to fix a tongue-tie? ›

So, do tongue ties go away? The answer is no. The only way to get rid of or release a tongue-tie is with surgical treatment. Discovering your child has a tongue tie could be discouraging.

Do babies grow out of a tongue-tie? ›

As a person grows and develops, tongue anatomy does not change. People will not grow out of the condition, but most learn to manage the symptoms as they age. For example, having tongue-tie can be a problem for newborns who rely on breastfeeding.

What are the cons of removing a tongue-tie? ›

Despite its effectiveness and low-risk nature, there are some disadvantages of having a frenectomy, which include:
  • Uncontrolled Speech. ...
  • Difficulty Swallowing Food. ...
  • Pain And Discomfort. ...
  • Risk Of Complications. ...
  • Outcome Inconsistency.

Can tongue tie be misdiagnosed? ›

Sadly, tongue-ties can be misdiagnosed, leading to an unnecessary and sometimes harmful procedure when there's actually another reason for a baby's feeding troubles. In severe cases, we have even seen infants require feeding tubes after complications from laser tongue-tie procedures.

Is tongue tie related to MTHFR? ›

Tongue tie (or ankyloglossia) is often associated with MTHFR genetic mutation. The condition of tongue tie is often accompanied by lip ties (labial ties), cheek ties (buccal ties), and sometimes with other midline defects. The genetic mutation of MTHFR is often responsible for midline defects like tongue tie.

Why is the tongue tie increasing? ›

Tongue ties are being blamed on social media for a slew of woes affecting infants—from nipple pain to poor napping to speech issues—but many experts agree that the rise in diagnosis and treatment is being led by consumer demand rather than by hard science.

Is tongue tied a real condition? ›

Tongue-tie, or ankyloglossia, is when an unusually short, thick or tight band of tissue tethers the bottom of the tongue's tip to the floor of the mouth. The band of tissue is called the frenulum.

What are the long term effects of tongue-tie? ›

Tongue tie can also contribute to high arch palate which impacts the alignment of the upper teeth as well as how the upper and lower jaw bite together. Leaving ties unresolved can complicate these orthodontic symptoms, whereas treating them prior to teeth can prevent or alleviate some of these orthodontic issues.

What happens if you don't correct a tongue-tie? ›

After tongue-tie goes untreated as the baby grows into a young child, the child may experience these health consequences: Inability to chew. Choking, gagging, or vomiting foods. Eating in food fads.

Is tongue-tie a genetic mutation? ›

Although more research is needed to better understand the causes of this condition, some evidence points to a genetic mutation known as MTHFR (methylenetetrahydrofolate reductase). Tongue tie is hereditary and is often passed down from one generation to the next.

References

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